Children: Legal & Ethical Issues: Resources


Children: Legal & Ethical Issues

  
 

Resources

Word document
  1. References
  2. Bibliography


References

  1. Prince v. Massachusetts, 158 U.S. (1944).
  2. Committee on Bioethics American Academy of Pediatrics. (1995). Informed consent, parental permission, and assent in pediatric practice. Pediatrics, 95(2), 314-317.
  3. Menahem, S., & Halasz, G. (2000). Parental non-compliance--a pediatric dilemma. A medical and psychodynamic perspective. Care Health Dev, 26(1), 61-72.
  4. Martinson, I. (1996). An international perspective on palliative care for children. Journal of Palliative Care, 12(3), 13-15.
  5. Liben, S. (1996). Pediatric palliative medicine: obstacles to overcome. J Palliat Care, 12(3), 24-28.
  6. Fleischman, A. R., Nolan, K., Duble, N. N., Epsten, M. F., Gerben, M. A., Jellinek, M. S., Litt, I. F., Miles, M. S., Oppenheimer, S., Shaw, A., & et al. (1994). Caring for gravely ill children. Pediatrics, 94(4 Pt 1), 433-439.
  7. Wolfe, J., Grier, H. E., Klar, N., Levin, S. B., Ellenbogen, J. M., Salem-Schatz, S., Emanuel, E. J., & Weeks, J. C. (2000). Symptoms and suffering at the end of life in children with cancer [see comments]. N Engl J Med, 342(5), 326-333.
  8. Lauer, M. E., Mulhern, R. K., Wallskog, J. M., & Camitta, B. M. (1983). A comparison study of parental adaptation following a child's death at home or in the hospital. Pediatrics, 71(1), 107-112.
  9. Lund, N. (1985). Infanticide, physicians, and the law: the "Baby Doe" amendments to the Child Abuse Prevention and Treatment Act. J Law Med., 11(1), 1-29.
  10. Frader, J. E. (2000). MSJAMA: Baby Doe blinders. JAMA, 284(9), 1143.
  11. Glover, J. J., & Rushton, C. (1995). From Baby Doe to Baby K: evolving challenges in pediatric ethics. J Law Med. Ethics, 23(1), 5-6.
  12. Cook, L. A., & Watchko, J. F. (1996). Decision making for the critically ill neonate near the end of life. J Perinatol, 16(2 Pt 1), 133-136.
  13. Meadow, W., Lantos, J. D., Mokalla, M., & Reimshisel, T. (1996). Distributive justice across generations. Epidemiology of ICU care for the very young and the very old. Clin. Perinatol, 23(3), 597-608.
  14. Meadow, W., Reimshisel, T., & Lantos, J. (1996). Birth weight-specific mortality for extremely low birth weight infants vanishes by four days of life: epidemiology and ethics in the neonatal intensive care unit. Pediatrics, 97(5), 636-643.
  15. Makhseed, M., Al-Sharhan, M., Egbase, P., Al-Essa, M., & Grudzinskas, J. G. (1998). Maternal and perinatal outcomes of multiple pregnancy following IVF-ET. Int J Gynaecol Obstet, 61(2), 155-163.
  16. Klotzko, A. J. (1998). Medical miracle or medical mischief? Hastings Center Report, 28(3), 5-8.
  17. McVey, C. (1998). Pain in the very preterm baby: 'suffer little children?' Pediatr Rehabil, 2(2), 47-55.
  18. Fleischman, A. (1998). Commentary: ethical issues in pediatric pain management and terminal sedation. Journal of Pain and Symptom Management, 15(4), 260-261.
  19. Penticuff, J. H. (1989). Infant suffering and nurse advocacy in neonatal intensive care. Nursing Clinics of North America, 24(4), 987-997.
  20. Siever, B. A. (1994). Pain management and potentially life-shortening analgesia in the terminally ill child: the ethical implications for pediatric nurses. J Pediatr Nurs, 9(5), 307-312.

Bibliography

  1. Barr, P., & Courtman, S. P. (1998). Cardiopulmonary resuscitation in the newborn intensive care unit. J Paediatr Child Health, 34(6), 503-507.
  2. Carrese, J., Brown, K., & Jameton, A. (1993). Culture, healing, and professional obligations. Hastings Center Report, 23(4), 15-17.
  3. Clayton, E. W., & Kodish, E. (1999). Baby Aaron and the elders. Hastings Center Report, 29(5), 20-21.
  4. Davies, B., Deveau, E., deVeber, B., Howell, D., Martinson, I., Papadatou, D., Pask, E., & Stevens, M. (1998). Experiences of mothers in five countries whose child died of cancer. Cancer Nurs, 21(5), 301-311.
  5. Davison, T. H., Karp, W. B., & Kanto, W. P. J. (1994). Clinical characteristics and outcomes of infants requiring long-term neonatal intensive care. J Perinatol, 14(6), 461-466.
  6. Goldworth, A., & Benitz, W. E. (1997). Demands for all-out rescue. Pediatric Perinat Epidemiol, 11(3), 377-378.
  7. Gortner, L., Wauer, R. R., Stock, G. J., Reiter, H. L., Reiss, I., Jorch, G., Hentschel, R., & Hieronimi, G. (1999). Neonatal outcome in small for gestational age infants: do they really do better? J Perinat Med, 27(6), 484-489.
  8. Hardwig, J. (1993). The Problem of Proxies with Interests of Their Own: Toward a Better Theory of Proxy Decisions. Journal of Clinical Ethics, 4(1), 20-27.
  9. Hefferman, P., & Heilig, S. (1999). Giving "moral distress" a voice: ethical concerns among neonatal intensive care unit personnel. Camb Q Healthc Ethics, 8(2), 173-178.
  10. Jecker, N. S. (1990). The role of intimate others in medical decision making. Gerontologist, 30(1), 65-71.
  11. Jecker, N. S. (1993). Being a Burden on Others. Journal of Clinical Ethics, 4(1), 16-20.
  12. Lauer, M. E., Mulhern, R. K., Wallskog, J. M., & Camitta, B. M. (1983). A comparison study of parental adaptation following a child's death at home or in the hospital. Pediatrics, 71(1), 107-112.
  13. Liben, S. (1996). Pediatric palliative medicine: obstacles to overcome. J Palliat Care, 12(3), 24-28.
  14. Martinson, I. (1995). Improving care of dying children. Western Journal of Medicine, 163, 258-262.
  15. Mitchell, C. (2000, Aug. 28). When living is a fate worse than death. Newsweek, 136, 12.
  16. Moore, D. L. (1995). Challenging parental decisions to overtreat children. Health Matrix, 5(2), 311-323.
  17. Paris, J. J., Crone, R. K., & Reardon, F. E. (1991). Ethical context for physician refusal of requested treatment. J Perinatol, 11(3), 273-275.
  18. Penticuff, J. H. (1990). Ethics in pediatric nursing: advocacy and the child's "determining self". Issues Compr Pediatr Nurs, 13(3), 221-229.
  19. Resnick, M. B., Gomatam, S. V., Carter, R. L., Ariet, M., Roth, J., Kilgore, K. L., Bucciarelli, R. L., Mahan, C. S., Curran, J. S., & Eitzman, D. V. (1998). Educational disabilities of neonatal intensive care graduates. Pediatrics, 102(2 Pt 1), 308-314.
  20. Sagara, M., & Pickett, M. (1998). Sociocultural influences and care of dying children in Japan and the United States. Cancer Nurs, 21(4), 274-281.
  21. Seng, P. (2000). Naming in Cambodian Culture. http://ethnomed.org/
  22. Xiao, Z. H., Andre, P., Lacaze-Masmonteil, T., Audibert, F., Zupan, V., & Dehan, M. (2000). Outcome of premature infants delivered after prolonged premature rupture of membranes before 25 weeks of gestation. Eur J Obstet Gynecol Reprod Biol., 90(1), 67-71.
  23. Yeo, C. L., Choo, S., & Ho, L. Y. (1997). Chronic lung disease in very low birthweight infants: a 5-year review. J Paediatr Child Health, 33(2), 102-106.


©2001 D.J. Wilkie & TNEEL Investigators